Tantrums at bedtime, delayed speech, socially crippling shyness, toilet training and finicky eating — when these everyday concerns become overwhelming parents expect their child’s doctor to have solutions, says Joanna Bogin, a program supervisor for the Children’s Trust Fund in Connecticut, a state agency that promotes health and safety.
The American Academy of Pediatrics recommends that pediatricians screen for developmental delays when a child is 9, 18 and 30 months old, and whenever parents raise concerns.
The professionals call it developmental surveillance, a process to spot signs of autism, a speech impediment or poor social skills, among other concerns that keep a child from learning steadily or behaving appropriately for his or her age.
“We are asking [physicians] to screen younger and younger children for developmental concerns, but most don’t have the time or expertise to do that, and they aren’t getting reimbursed for it,” says Margot Kaplan-Sanoff, an associate professor of pediatrics at the Boston University School of Medicine.
“Families frequently need more time than the physician can give during a well child visit,” said Barry Zuckerman, chair of pediatrics at Boston University School of Medicine. “
When anxious parents show up looking for developmental and behavioral guidance and their pediatrician is pressed for time, parents go home frustrated. That frustration and a national push to ensure that children enter kindergarten ready to learn has inspired two early childhood development programs based in pediatricians’ offices.
Connecticut’s Help Me Grow program and the farther-reaching Healthy Steps for Young Children program both use the pediatrician’s office as a jumping-off point for recognizing developmental problems in the years from birth to age three.
Healthy Steps for Young Children, with more than 50 sites across the country, matches doctors with an expert in early childhood development. While the physician focuses on coughs and earaches, the Healthy Steps Specialist offers parents advice and encouragement on behavior and learning. If needed, the specialist becomes the bridge from the doctor’s office to community services that can provide more intensive help and testing.
The Help Me Grow Program — piloted in Hartford, Conn., and then expanded statewide — trains pediatric practitioners in early childhood development and encourages pediatricians and other health care providers to offer regular, standardized child developmental screenings. The program also operates a telephone infoline, provides referrals and maintains an inventory of child development resources around the state.
Why the pediatrician’s office?
Many experts believe the pediatrician’s office is an ideal setting to identify struggling children.
“If you are looking for a universal, nonstigmatizing environment, it’s the pediatrician’s office because everybody goes,” Kaplan-Sanoff says.
DeAnn Davies, a Healthy Steps program coordinator in Phoenix, says her program is “appropriate for everyone from the family of our hospital CEO to the teen mom who is homeless and everyone in between.”
She says all kinds of families are bewildered by their children’s behavioral problems and points to television shows like “The Supernanny” and “Nanny 911” as examples.
“It shows that working class and middle class families are literally afraid of their children. They don’t know how to set limits, and they don’t know how to reverse a situation that’s gotten out of hand,” Kaplan-Sanoff says.
Bogin says Help Me Grow training is changing the way pediatricians communicate with parents.
“Ten years ago doctors might have asked: ‘Do you have any concerns?’ Parents think the doctor is asking about their child’s physical health. We encourage doctors to ask: ‘Do you have questions about how your child is learning, behaving or developing?’ That statement alone helps to open up conversation,” Bogin says.
In Connecticut, parents who participate in the Help Me Grow program fill out a periodic questionnaire that quizzes them about their child’s language, social and emotional progress. The assessment is analyzed and the results are retuned to the pediatrician’s office.
“If the questionnaire reveals concerns they get a call from us,” Bogin says.
Child development surveillance programs housed at the pediatrician’s office are designed to catch problems early, and some programs also promote healthy development through parent education and guidance.
Kadie Vinyard’s pediatrician participates in the Healthy Steps program. A child development expert joins the 26-year-old mom when she takes her three daughters in for well child visits.
“My girls have always been picky eaters. The pediatricians voice their concern about my girls’ weight, but they don’t tell me how to get my girls to eat more. The Healthy Steps Specialist gave me ideas on how to make my girls more interested in food,” says Vinyard, who lives in Glendale, Ariz.
Michael Barth, national director of Healthy Steps, says when a child development professional sits in on a doctor’s appointment there is an extra set of expert eyes in the room to observe family dynamics and screen for problems.
DeAnn Davies, a Healthy Steps Program Coordinator in Phoenix, teaches novice pediatricians to walk into an exam room and look for clues that a child is meeting developmental milestones.
“The pediatric residents haven’t had a lot of training in child development,” Davies says. “They tell me that 80 percent of their training is in diagnosing problems and 20 percent on well-child care. When they get into practice, what they actually do in real life is actually the opposite.”
Research studies at Healthy Steps sites suggest that parents are more satisfied with their child’s medical care and that participating families engage in more nurturing parenting practices like using proper car restraints and encouraging children to read.
Pediatrician Barry Zuckerman says at first some of his colleagues balked at the idea of sharing the room with someone else. But now, doctors tell him the child development specialist improves the service they offer and gives their practice a competitive advantage.
“Even if they aren’t the team member giving the developmental advice their patients are getting the best possible care, and the pediatrician becomes the leader of the team that provides that care,” Zuckerman says.
By Taunya English
Prepared Patient Volume 1, Issue 5